Closed petition Provide a clinical pathway, medical care, and specialists for people with Tourette’s syndrome in Wales

Tourette’s affects 1 in 100 children. It is not a rare condition. In Wales there is 1 specialist who doesn't see children.
Tourette’s syndrome is a neurological disorder that affects the nervous system and causes tics. Tics are involuntary, sudden, and repetitive movements and sounds. Tourette’s syndrome can be painful and debilitating.
Lots of people are unable to get a diagnosis due to no pathway or get discharged the same day with no ongoing medical care and support. Tourette’s isn't just swearing.

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Not getting medical care and support can lead to long term mental health problems. People with Tourette’s can have difficulties with anxiety, sleep, rage and social isolation.

We NEED a proper, clear, clinical pathway and access to specialist provision and medical care for people with Tourette’s syndrome in Wales.

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The Senedd debated this topic

This topic was debated on 25 May 2022

Watch the petition ‘Provide a clinical pathway, medical care, and specialists for people with Tourette’s syndrome in Wales’ being debated

The petition was debated by the Senedd in Plenary on 25 May 2022.