Petition Instruct NHS Wales to add Adenomyosis to its 111 A-Z webpages

April is Adenomyosis Awareness Month and Fair Treatment for the Women of Wales (FTWW) would like to see that awareness extend to NHS Wales. Adenomyosis is one of the most common menstrual health conditions – yet many have never heard of it.

Unlike NHS England and NHS Scotland, the NHS Wales 111 website A-Z does not feature adenomyosis, despite it affecting more than 1 in 10 women and people with a uterus - the same as the number of women living with diabetes or asthma!

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FTWW calls on the Senedd to instruct NHS Wales to add Adenomyosis to its 111 A-Z webpages, so patients in Wales can access trusted information in English and Welsh, and aren't left behind patients in England or Scotland, for whom this information is already available.

Adenomyosis occurs when the lining of the uterus (womb) starts growing into the muscle in the wall of the womb. It is more commonly diagnosed in women over the age of 30 but can affect anyone who has periods. Symptoms can include very heavy and painful periods, bloating and a feeling of heaviness or fullness in the tummy, backache, upper leg ache, fatigue, and painful sex.

It's commonly seen alongside endometriosis; often when patients report having relief from symptoms after a hysterectomy, it's likely adenomyosis was the culprit - but many have no idea they had it and aren't given any information about it. We’d like that to change!

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