Completed petition Lives not Airports

We call upon the National Assembly for Wales to urge the Welsh Government to consider the following. Procedures currently in place that decide case by case the delivery of specialised medicines to patients through the Welsh Health Special Services Committee (WHSSC) are fundamentally flawed, damaging and extremely distressing to patients. New protocols and procedures are now required as a matter of urgency…

The Welsh Government must review the whole procedure of allocating specialised medicines to patients. The system needs to be made far simpler to navigate. Doctors must have more say in the decision making process as they are the best judge of a ‘patients’ needs. Alternative ways to fund medicines, such as negotiating with manufacturers more realistic pricing structures and the possibility of individual short term free trials should be looked at.

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